First day of EB awareness week 2020

Oct 25th to 31 2020 EB Awareness week!
Today marks the first day of EB Awareness week, this year I’m going to share with you all about what DEBRA Canada dose and each Board of Directors.
DEBRA Canada is a voluntary, registered, non-profit organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging skin conditions.
DEBRA Canada is the only organizational body in Canada exclusively committed to the care and support of families affected by EB and to improving their quality of life.
To learn more about DEBRA Canada go to this link:
https://debracanada.org/
You all maybe thing why share this type of information with you all, well if it was not for all the lovely people who works on the board of Director then DEBRA Canada would not be where they are right now.
There is 14 Board of Director each person on the board has a big role to play, they all have their own jobs to do, so I'm going to introduce you to the first 2 board member’s.
Tina Boileau ,
Tina is the president of DEBRA Canada; Tina became involved with DEBRA Canada in 2012 you can contact Tina in English or French. Tina is also a parent to a lovely son name Jonathan Pitre who gain his butterfly wings in 2018. To read more about Tina and what she does on the Board of Director go to this links: https://debracanada.donorshops.com/tina
Link to Tina’s EB story: https://debracanada.donorshops.com/eb-stories/tina-boileau
This link you can read about Tina’s son Jonathan : https://debracanada.donorshops.com/eb-stories/jonathan-pitre
The sec Board member I’m going to share with you all is:
Ryan Hultman
Ryan is the vice President, North Vancouver, British Columbia, Ryan became involved with DEBRA Canada in March 2012, Ryan host’s the Annual Bella’s Ball fundraiser on Grouse Mountains Skating pond, this fantastic event raised just over $34,000.00 this year, all this money that is raised goes and help’s out family’s in the EB community. Ryan youngest daughter name Requel has EB also.
To read more about Ryan and what he does on the Board of Director go to this link: https://debracanada.donorshops.com/ryan
Go to this link to read the recap of 2020 Bella Ball fundraiser:
https://debracanada.donorshops.com/.../2020-bellas-ball...
Go to this link and you can read about Ryan’s daughter Requel EB Story: https://debracanada.donorshops.com/eb-stories/raquel
Please feel free to share this with your family and friends and social media!
#EBawareness #debracanada #butterfly