Today is day 6 of EB awareness week: I have been asked what do I eat when I have sores in my mouth/throat and do I have a feeding tube. The answer to the feeding tube is NO!
It all depend on how many sores I have in my mouth. If I have 1 or 2 I just eat what I normally eat. If my mouth is to sore to ear I just eat soft food or I just thinking up my drinks with "Thickening upper".
Some of you might think that if it more thick it would be hard to get down. But the truth is it is easier to get down. Thicker liquids travel more slowly down the throat and that makes it easier to swallow.
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