EB Awareness week 2014

Form October 25-31 is EB awareness week. I'm 1 in more than 2000,000 people born with a rare condition. I was born with a rare skin condition called Epidermolysis Bullosa (EB). My skin is also sometimes referred to as Butterfly Skin.

When someone is born with EB it means they are missing the glue that holds their skin together. A way to describe what my skin is like is this: Put two pieces of paper together and if you let them go they will just fall to the ground because there was no glue to hold them together. That is what my skin is like.

Now just think about when you put tape on your skin, You take it off and it dose not hurt. some people with (EB) they cannot use tape. When tape touches our skin or if we bump in to something or fall, it will make a blister.

Just think of when you a thin piece of paper and put it in water and then take it out the paper will just rip, or when you put tape on paper and you take the tape off the paper will come off with the tape. That is what my skin is like when I get tape on me. My skin will come off with tape.

Some of you that are reading this might think would sound painful. I will say yes it is painful when I get some thing on my skin that should not be there. (A.K.A Tape). I don't live in pain 24/7. Sometimes I'm  in pain because my sore that day/week is not liking me. On those days I just push aside the pain and keep on going for the day.

I'm not looking for people to feel sorry for me or for people to think I'm looking for some sympathy. I;m just wanting to let everyone know that October 25-31 is EB awareness week and I wanted to share with you all about my skin. Also to let you all know that I'm  just like you, but my skin is a little bit more sensitive than yours.