As many of you know today marks the first day of EB Awareness Week. As many of you know for the past 2 3 years I have been posting information about EB, Many of you know I have EB and I don't like EB stop me from my day to day life.
For the people that does not know what EB is hear is a brief information explaining what EB is. EB stand for (Epidermolysis Bullosa) and sometime I can be referred to butterfly skin. So when I was born I was born missing the glue that holds my skin together.
I don't life in 24/7 pain. As you can see I don't call EB a disease, I call it a condition. Many of you know I don't look for People to fell sorry for me or people to think I'm looking for sympathy. I'm just wanting to let everyone know that October 25-31 is EB awareness week and I want to share with you all about my skin. Also let you all know I'm just like you, but my skin is a little bit more sensitive than yours.
#EBweek and #USeb.
No comments:
Post a Comment