Part 2 of EB Awareness week!
The word DISEASE!
I have been having some mixed feelings about the word disease. I know in the medical books they call EB a genetic disease but to me EB is not a disease it's a skin condition. When I hear the word disease tit offends me big time. EB to me is not a disease it's a skin condition. I have learned that when I say the word disease a lot of people are like EWWW you have a disease get away form me. I don't want to get what you have. Then I'm like EB is not contagious. Then I find it takes me longer to explain what EB is. So when people ask me about my skin I start out saying I was born with a skin condition and it's called EB. Then I explain what EB is. I have found that when I say it's a skin condition a lot of people are more willing to listen and do not get upset and think EB is contagious. I know many people call EB a disease but when I explain/post about it I will not use the word disease. I find it's just plain disrespectful and hurtful to call someone with EB or any skin condition that they have a disease. I know some might disagree with me and some might agree with me. I know everyone looks or views things differently.
No comments:
Post a Comment