It's that time a year again!

 International Epidermolysis Bullosa Awareness week October 25-31

So I have a challenge/request for people.  I'm working on a blog for EB awareness week. The information I get I  would like to put it my blog. Epidermolysis Bullosa is often referred to as butterfly skin as it can be found in any race of human and is fragile. The similarity to a butterfly comes to the fact that a butterfly is a magnificent insect, they come in different sizes and colors, but most of all, they are beautiful and fragile.

I'm looking for stories or some sort of information about people that have EB that is, “Positive”. Things like how you found out about EB. If you met someone with EB, that changed your thinking in a positive way.  You could just send me a picture of you or your kids that have EB. With the picture, I just would like to know what type of EB they have  and how old the kids are. Where you live is not important. My goal is to help other people understand the positive side of EB. 

Thanks in advance.