Today is day 3 of EB awareness week. I’m going to try to explain why some people with EB wears Seam free clothing, For some people with EB if their cloths have too much of a seam it can rub on our skin and make sores. Trying to find cloths that are seam free can be difficult to find in stores. There is a company that makes soft, seamless skin wear that works great for people with EB. The company name that make those cloths are called skinnies. Some people with EB wears them under their cloths to keep their bandages in place and to help there cloths they have on that have seams not to rub on their skin as much. What I have found for myself is if I can find cloths that have more spandex in then I have found it is more flexible for me to move and less rubbing on my skin. Yes there are not always seam free but it does not rub as much on my skin as it a little more loose on me.
I’m helping out Debra Canada by doing an online fundraiser has they have a Medical Assistance Fund they help people out with paying for the special cloths they many need. When you donate to my fundraising page you will also be helping out the Medical Assistance Fund. Also by donating you will get your name put in to a draw to have a chance to win the crochet butterfly blanket. Please feel free to share this with your family and friends and social media.
#debracanada #ebweek
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