Thursday, 25 October 2018

first day of EB awareness week 2018






Oct 25th is the first day of National Epidermolysis Bullosa Awareness Week. EB week runs from Oct 25th to the 31st. But why just it only for one week, why not help all thought the year, Like Jonathan Pitre , Jonathan was a young man that had EB and he went out and spread the word about EB. He was, and is, still a great and wonderful role model to everyone that has EB. He never let his EB stop him and he was always positive. As many as you know Jonathan has passed away this year, but although he is gone his positive and outgoing personality will always stay with everyone he has touch and helped. So for this week, and all through the years, let’s help and keep Jonathan Wave going. So please take your time to go to my fundraising page and donate. By donating you will be helping Debra Canada, and people out there like Jonathan and me and everyone else that has EB. Also by donating you will get your name put in to a draw to have a chance to win this one of a kind blanket. Please also share this with your family and friends and social media. #debracanada #ebweek




Picture of the blanket and picture of my and my dog Amigo.






Link to my fundraising page




https://interland3.donorperfect.net/weblink/weblink.aspx?name=E920311QE&id=13&cfifid=28

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