Today is day 5 of EB awareness week; and I have to say Face book can work in many great ways, and you all might be wonder what does this have to do with EB week, well the reason why I’m saying this is, I was able to meet a new family that only lives 2 hours away from me. The mom has EBS and her 3 year old daughter Mia also has EBS. Mia is your average 3 year old that loves to play and just have fun she does not let her EB stop her from doing stuff. This past Sunday Mia and her family were at Chapter’s in their home town and were signing their new children's book they wrote at Chapters on Sunday afternoon. The book titled is call (Mia Thrives), here is the new article to read more about it. https://barrie.ctvnews.ca/mobile/a-children-s-book-educates-public-about-a-rare-genetic-disease-1.4153109?fbclid=IwAR0JFSCHgy8a0ybWFE4NPCXO99Om4Y_71wz2O8XpqWtr_xwpaEZGk7h3L2Q
Also don’t forget to go to my Fundraising page and donate and you will get your name put in to a draw to have a chance to crochet butterfly blanket. Please feel free to share this with your family and friends and social media. #debracanada #ebweek
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